Neither myself, or the Outlaw Josey Descartes, see ourselves as being defined by our disability. If we were, the only thing we’d ever talk about to each other, let alone our loved ones and friends close by, would be Parkinson’s, Parkinson’s and more Parkinson’s. But even if that is what we did choose to discuss, how we discuss it, when we discuss it, and the terms in which we discuss it, is up to us. Because even though we aren’t defined by our disability, it is our right to define and defy it. And that is the individual prerogative of each and every person with a disability or chronic illness, whether mental, physical or both.
The Wax That Melts Our Wings
I’d say it’s what separates us, not from the beasts, but the bestial. Creating the future, renewing a learned past - these are reasons to strive. Writing for and with love, taking and framing an image, stretching new melodic skins onto old skeletons of song… it’s how we manage to fly. It’s how we stay you and me, not us and them.